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The Rob Loblay Prize
The inaugural Rob Loblay Prize Winner sponsored by Sydney Local Health District went to Karl Kennedy who gave a talk on 'Cultural Safety'.
The Rob Loblay prize was awarded on the following criteria:
1. Concise
2. Impactful
3. Informative
4. Include a Rob Loblay element!
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HREC Conference opening
Responsible AI challenges and responsibilities
Professor Niusha Shafiabady, Australian Catholic University
Resources shared in the chat:
Reimagining ethics pre-review
Emma Moloney, University of Tasmania
Navigating the rich tapestry of Australian privacy legislation: A survival guide for HRECs and researchers
Nik Zeps, Monash University
Waivers of consent and how much more cautious HRECs should be / waivers and your experience in the UK with data
Mark Taylor, University of Melbourne
The digital disruption of research
Clair Sullivan, The University of Queensland
Enhancing clinical data sharing and reuse: Balancing FAIR Principles with sensitive data protection
Rudolf Schnetler, Townsville Hospital and Health Service
Resources shared in the chat:
Quality vs quantity in HREC review in Australia
Gordon McGurk, The University of Queensland HREC Chair
Can IRBs (and HRECs) just be reasonable
Holly Fernandez-Lynch, University of Pennsylvania
Resources shared in the chat:
Clinical Research Data Sharing Frameworks: Supporting trustworthy and efficient practices
Lisa Eckstein, CT:IQ
Empowering human research ethics committee members to review genomics applications: Pilot testing of a custom online, educational resource
Aideen McInerney-Leo, The University of Queensland
Indigenous genomics research – ethical considerations for HRECs
Annalee Stearne, Telethon Kids Institute
An ethical, evidence-based program supporting researchers to return clinically actionable genomic information to research participants
Mary-Anne Young, University of New South Wales
A Review on the WHO Tool for Benchmarking Ethics Oversight of Health-related Research Involving Human Participants and Its Potential Implications for the Australian Context
Ehsan Shamsi Gooshki, Monash University
Resources shared in the chat:
Considerations in acquiring ethics approvals for research involving artificial intelligence: Development of a therapist assisted AI powered chatbot to increase gamblers’ awareness of risky gambling and overcome barriers to help-seeking
Tara Thornhill, Flinders Centre for Gambling Research
Practical strategies for safeguarding researchers engaging in sensitive research
Renee Fiolet, Deakin University
Beyond the Form: What types of communication with clinical research participants need ethical review?
Gudrun Wells, CT:IQ
Resources shared in the chat:
In pursuit of ethical and inclusive research: What ethics committees and disability researchers can learn from each other
Megan Walsh & Victoria Stead, Deakin University
Resources shared in the chat:
Lived experience and the HREC review process – opportunities
Brian Beh and Penelope McMillan, Consumer advocates
Ethical diligence or gatekeeping – the quandary when vulnerable populations are involved
Heather Lovatt, Central Queensland University
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Accessing England's patient records for research: 58 million and counting
Amir-Reza Mehrkar-Asi, University of Oxford, UK
Coming soon
Problem solving for HRECs
Chair: Gordon McGurk
Panel members: Michael Martin (ANU), Lindsay MacDonald (Canterbury, NZ), Rebecca Doyle (CHQ)
Conducting research with adolescents experiencing marginalisation and vulnerability
Jess Heerde, The University of Melbourne
More than just the paperwork: embedding ethical practices into how we engage and work with health consumers in research
Adrienne Young, The University of Queensland
Involve Australia - in an innovative and systematic approach to community involvement in genomic research
Keri Finlay & Anne McKenzie, Australian Genomics
The GenV participant advisory panel: Consumer engagement at scale in a large birth and parent cohort
Kate Wyatt (on behalf of Libby Hughes), Murdoch Children's Research Institute
The use of a proforma to support consumer engagement in research
Merela Ghazal and Brian Dalton, Sydney Local Health District
Consumer engagement panel discussion
Chaired by Natasha Roberts, University of Queensland
Resources shared:
Psychedelic panel discussion
Hudson Birden, Ian Tindall and Paul Gatenby
Indigenous guidelines
Hayley Germaine, Northern Territory
Human remains, research and indigenous peoples. A perspective from the Human Remains Committee in Norway
Lene Os Johannessen, Norway
HREC accreditation standards
Conor Brophy
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Professionalising the scientific review
Melvin Chin, NSW Government - Health, South Eastern Sydney Local Health district
Barriers and facilitators to retention in long term paediatric clinical trials
Jessie Head-Gray, Murdoch Children's Research Institute
Approaches for registering adaptive trials in the Australian New Zealand Clinical Trials Registry (ANZCTR)
Melina Willson & Peta Skeers, The University of Sydney
Resources shared in the chat:
Facilitating up-to-date information on clinical trials: a case for collaboration between ethics committees and the Australian New Zealand Clinical Trials Registry (ANZCTR)
Angie Barba (presented by Ava Grace Tan-Koay and Melina Willson), The University of Sydney
What is the national prevalence of statisticians as full members of human research ethics committees in Australia?
Adrian Barnett, Queensland University of Technology
Resources shared in the chat:
Geographies of ethics, rural communities and education research: a struggle for ethical research
Dipane Hlalele, University of Kwazulu-Natal, South Africa
Visual Consent Tools for Participant Information and Consent in Health Research with First Nations Peoples
Mina Kinghorn, The University of Queensland
What constitutes informed in informed consent?
Ian Pieper
Coming soon (11 December)
Determining decision-making abilities of people with intellectual disability consenting to participate in qualitative research – moving from substitutes to supporters
Rhonda Beggs, Logan and Beaudesert Hospital
Inclusive consent practices: Learnings from Generation Victoria
Libby Hughes, Murdoch Children's Research Institute
HREC Conference 2024 closing remarks
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