National HREC Conference 2024

HREC Conference opening

Responsible AI challenges and responsibilities

Professor Niusha Shafiabady, Australian Catholic University

Reimagining ethics pre-review

Emma Moloney, University of Tasmania

Navigating the rich tapestry of Australian privacy legislation: A survival guide for HRECs and researchers

Nik Zeps, Monash University

Waivers of consent and how much more cautious HRECs should be / waivers and your experience in the UK with data

Mark Taylor, University of Melbourne

The digital disruption of research

Clair Sullivan, The University of Queensland

Enhancing clinical data sharing and reuse: Balancing FAIR Principles with sensitive data protection

Rudolf Schnetler, Townsville Hospital and Health Service

Quality vs quantity in HREC review in Australia

Gordon McGurk, The University of Queensland HREC Chair

Can IRBs (and HRECs) just be reasonable

Holly Fernandez-Lynch, University of Pennsylvania

Clinical Research Data Sharing Frameworks: Supporting trustworthy and efficient practices

Lisa Eckstein, CT:IQ

Empowering human research ethics committee members to review genomics applications: Pilot testing of a custom online, educational resource

Aideen McInerney-Leo, The University of Queensland

Indigenous genomics research – ethical considerations for HRECs

Annalee Stearne, Telethon Kids Institute

An ethical, evidence-based program supporting researchers to return clinically actionable genomic information to research participants

Mary-Anne Young, University of New South Wales

A Review on the WHO Tool for Benchmarking Ethics Oversight of Health-related Research Involving Human Participants and Its Potential Implications for the Australian Context

Ehsan Shamsi Gooshki, Monash University

Considerations in acquiring ethics approvals for research involving artificial intelligence: Development of a therapist assisted AI powered chatbot to increase gamblers’ awareness of risky gambling and overcome barriers to help-seeking

Tara Thornhill, Flinders Centre for Gambling Research

Practical strategies for safeguarding researchers engaging in sensitive research

Renee Fiolet, Deakin University

Beyond the Form: What types of communication with clinical research participants need ethical review?

Gudrun Wells, CT:IQ

In pursuit of ethical and inclusive research: What ethics committees and disability researchers can learn from each other

Megan Walsh & Victoria Stead, Deakin University

Lived experience and the HREC review process – opportunities

Brian Beh and Penelope McMillan, Consumer advocates

Ethical diligence or gatekeeping – the quandary when vulnerable populations are involved

Heather Lovatt, Central Queensland University

Accessing England's patient records for research: 58 million and counting

Amir-Reza Mehrkar-Asi, University of Oxford, UK

Coming soon

Problem solving for HRECs

Chair: Gordon McGurk
Panel members: Michael Martin (ANU), Lindsay MacDonald (Canterbury, NZ), Rebecca Doyle (CHQ)

Conducting research with adolescents experiencing marginalisation and vulnerability

Jess Heerde, The University of Melbourne

More than just the paperwork: embedding ethical practices into how we engage and work with health consumers in research

Adrienne Young, The University of Queensland

Involve Australia - in an innovative and systematic approach to community involvement in genomic research

Keri Finlay & Anne McKenzie, Australian Genomics

The GenV participant advisory panel: Consumer engagement at scale in a large birth and parent cohort

Kate Wyatt (on behalf of Libby Hughes), Murdoch Children's Research Institute

The use of a proforma to support consumer engagement in research

Merela Ghazal and Brian Dalton, Sydney Local Health District

Consumer engagement panel discussion

Chaired by Natasha Roberts, University of Queensland

Psychedelic panel discussion

Hudson Birden, Ian Tindall and Paul Gatenby

Indigenous guidelines

Hayley Germaine, Northern Territory

Human remains, research and indigenous peoples. A perspective from the Human Remains Committee in Norway

Lene Os Johannessen, Norway

HREC accreditation standards

Conor Brophy

Professionalising the scientific review

Melvin Chin, NSW Government - Health, South Eastern Sydney Local Health district

Barriers and facilitators to retention in long term paediatric clinical trials

Jessie Head-Gray, Murdoch Children's Research Institute

Approaches for registering adaptive trials in the Australian New Zealand Clinical Trials Registry (ANZCTR)

Melina Willson & Peta Skeers, The University of Sydney

Facilitating up-to-date information on clinical trials: a case for collaboration between ethics committees and the Australian New Zealand Clinical Trials Registry (ANZCTR)

Angie Barba (presented by Ava Grace Tan-Koay and Melina Willson), The University of Sydney

What is the national prevalence of statisticians as full members of human research ethics committees in Australia?

Adrian Barnett, Queensland University of Technology

Geographies of ethics, rural communities and education research: a struggle for ethical research

Dipane Hlalele, University of Kwazulu-Natal, South Africa

Visual Consent Tools for Participant Information and Consent in Health Research with First Nations Peoples

Mina Kinghorn, The University of Queensland

HREC Coordinators Session

Hear updates from Bernadette Aliprandi-Costa, Michael Swarbrick and Jeremy Kenner.

Determining decision-making abilities of people with intellectual disability consenting to participate in qualitative research – moving from substitutes to supporters

Rhonda Beggs, Logan and Beaudesert Hospital

Inclusive consent practices: Learnings from Generation Victoria

Libby Hughes, Murdoch Children's Research Institute

HREC Conference 2024 closing remarks