Consumer and community involvement resources

National Health and Medical Research Council’s statement on consumer and community involvement in health and medical research:

Consumers, community members, researchers and research organisations working in partnerships, to improve the health and well-being of all Australians through health and medical research.

Health research and health communities are increasingly recognising the value of involving consumers and community at all stages of the research process.

A common question from researchers is ‘when should I involve consumers and community in my research?’

You can involve consumers in:

  • generating research ideas

  • designing your project

  • developing research resources such as information sheets and consent forms

  • conducting research activities

  • interpreting and analysing results and their implications for policy and practice

  • helping to promote the use of research to inform improvement in healthcare and health outcomes, especially research that suggests a change in public awareness or behaviour.

Some resources to help you to involve consumers and community are listed below.

Australian resources

Consumer and Community Involvement Handbook & Quick Guide (AHRA)

Culturally and Linguistically Diverse Ethics Resources (CALDER)

Australian Health Research Alliance

Health Translation South Australia

Western Australian Health Translation Network

Monash Partners

Melbourne Academic Centre for Health

Sydney Health Partners

National Health and Medical Research Council

Australian Clinical Trials Alliance

International resources

Patient Centered Outcomes Research Institute USA

National Institute for Health Research UK

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