Health Studies Australian National Data Asset’s (HeSANDA) Queensland node is a statewide online catalogue that curates, stores and enables the sharing of health research data generated by the Queensland research community. Initially starting with clinical trials the catalogue will be expanded in stages to include data from cohort and other studies.
Queensland researchers, staff and students can upload a description of their data sets (metadata) and outputs (such as protocol/data dictionary) from clinical trials initiated in Queensland into the Queensland node’s DataVerse system.
Data set descriptions entered into the Queensland node will become searchable in both the Queensland node and the national catalogue Health Data Australia.
The research data set or individual participant data (IPD) is always held by the organisations responsible for the clinical trials. The researchers who created the data always maintain control over their data and outputs and determine with whom it is shared.
The Queensland node can be searched for statewide data sets available for secondary re-use. Health Data Australia can be searched for wider national data sets and can be used to submit a data request to the data owner.
Click to see how the HeSANDA nodes work.
A wealth of data is created through health research studies, including information about the people taking part in the research, their health and their response to interventions being studied.
The data collected across studies is valuable for more than just the original piece of research. It is essential for guiding clinical practices, informing the design of new studies, and can be utilised in new analyses to generate new research findings.
Sharing information about your health research data via the Queensland node and making it discoverable through the node and Health Data Australia means streamlining efforts, aligning approaches and building national data sharing capability.
The Queensland node is administered by Health Translation Queensland in collaboration with CSIRO’s Australian e-Health Research Centre and the Queensland Cyber Infrastructure Foundation (QCIF).
The
Queensland node of HeSANDA received investment from the Australian Research
Data Commons (ARDC). The ARDC is
funded by the National Collaborative Research Infrastructure Strategy (NCRIS).
Contact the Queensland node team if you have questions or need assistance with using the Queensland node.
There are 9 HeSANDA nodes that represent 72 health research organisations across Australia. If you are a researcher based in Queensland, please enter your data into the Queensland node.
If you have another data set complete the Queensland node request form with your new trial details. Your new trial will be uploaded and you will receive a message when this process has been completed.
All staff in Queensland universities, research institutes and hospital and health services can use the Queensland node.
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Health Translation Queensland acknowledges the Traditional Owners and their custodianship of the lands on which we live, work, and play. We pay our respects to their Ancestors and their Descendants, who continue cultural and spiritual connections to Country. We recognise their valuable contributions to Australian and global society.
