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HeSANDA initiative

HeSANDA initiative

The Australian Research Data Commons (ARDC) has developed the HeSANDA (Health Studies Australian National Data Asset) program to build national infrastructure to support access to and the sharing and reuse of health research data. The program seeks to add value to the research community, increase researcher collaboration and the efficiency and effectiveness of research, ultimately delivering benefits for the health of Australia’s population.

The research community across Australia has been working together through HeSANDA to develop Health Data Australia, a catalogue for health and medical researchers to register a description of their research so it’s easy to discover.

In Phase 1, HeSANDA focused on investigator-initiated and academic clinical trials. Phase 2 (2023-2028) will provide opportunities to consolidate capability for clinical trials, extend the approach to other health study types such as cohort studies and clinical registries, and deploy new capabilities such as secure access environments.

To date, 9 nodes (clusters of research organisations) have been formed to support the infrastructure development of the HeSANDA program. This includes the Queensland node.

Queensland node focus

The Queensland node project is administered by Health Translation Queensland in collaboration with CSIRO’s Australian e-Health Research Centre (AEHRC) and the Queensland Cyber Infrastructure Foundation (QCIF).

The project team is supported by a Steering Committee with representatives from Queensland research organisations, who provide project oversight.

The node’s current work is focusing on the systems and processes that will enable findability and accessibility of clinical trial study data. The node is currently developing a:

  • data repository (hosted by QCIF) to securely store high-level descriptive clinical trials information (i.e. study protocol, data dictionary, publications) for trials available for data sharing
  • data request system to review data access requests and allow data sharing.

Queensland node funding

The Queensland node of HeSANDA received investment from the Australian Research Data Commons (ARDC). The ARDC is funded by the National Collaborative Research Infrastructure Strategy (NCRIS).

Queensland node contributions

If you are a principal investigator who is interested in learning more about sharing your clinical trial data, please contact the Queensland node team at research@healthtranslationqld.org.au.

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