29 August 2022
As Queensland Genomics laid the foundations for genomics in Queensland's healthcare system and associated research, its Community Advisory Group (the Queensland Genomics Community Group) was empowered and funded to identify and lead projects of its own, aimed at improving access and understanding of genomics services for all Queenslanders.
A recent publication in Frontiers in Genetics explores the Queensland Genomics Community Group structure and function and its recommendations for similar groups based on its members’ perspectives.
A dual purpose
Queensland Genomics was a five-year program (2016–2021) of initiatives and research projects focused on building whole-of-system capacity and capability in genomics. The Queensland Genomics Community Group brought together health consumers, clinicians, health researchers and administrators to help inform projects and build capacity across the healthcare community.
The group met quarterly during the life of the Queensland Genomics program and had a dual purpose, which was to:
Queensland Genomics Community Group's community-led projects included:
In reviewing the Queensland Genomics Community Group’s activities, the members identified several recommendations for similar groups. In particular, their experience highlighted the importance of:
Ultimately, the group’s self-evaluation and members’ perspectives provide useful insights for other initiatives seeking to undertake consumer and community engagement in genomics.
Read the full article:
“Community input in a genomic health implementation program: Perspectives of a community advisory group” Frontiers in Genetics
For more information about the Queensland Genomics Community Group, please email Katrina Cutler.
In 2020, Queensland Genomics joined Health Translation Queensland (then Brisbane Diamantina Health Partners) to ensure the program had strategic support during its final year. Building on the work of Queensland Genomics, Queensland Health established the Genomics Executive Working Group to create Queensland’s genomics policy position and explore options for ongoing activity and investment in genomics. More details.
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