5th National HREC Conference

Date: 27 - 29 November 2024

Venue: Online

5th National HREC Conference

We are delighted to invite you to join us for this exciting event, where professionals from around Australasia come together to advance the field of human research ethics. Whether you are a committee member, HREC Chair, professional staff, or researcher, this conference offers a unique opportunity to engage with leading voices and explore critical issues that shape research ethics.

Our conference is dedicated to fostering dialogue, sharing knowledge, and promoting best practices in the ethical conduct of human research. Over the course of this event, you will have the chance to participate in a variety of sessions, including keynote addresses, workshops and online discussion opportunities, aimed at enhancing your practical and ethical application of your skills and knowledge.

Delivered through an online webinar and recorded video our conference aims to facilitate optimal attendee engagement and content accessibility.

This conference will again be free and held virtually across 3 full days from 27 - 29 November 2024.

The conference will be held in the AEST-Brisbane time zone (GMT+10).

The call for abstracts is now closed.

Don't miss out

08:30 - 09:00

AEST-QLD

Conference welcome 
Gordon McGurk

Acknowledgement of country
TBC

Opening address
Colin Thompson

09:00 - 10:00

AEST-QLD

Plenary Session

Responsible AI- Challenges and Responsibilities
Associate Professor Niusha Shafiabady, Australian Catholic University

Reimagining ethics pre-review
Emma Moloney, University of Tasmania

10:15 - 11:45

AEST-QLD

Session - Data
Navigating the rich tapestry of Australian privacy legislation: A survival guide for HRECs and researchers
Nik Zepps, Monash University

Waivers of consent and how much more cautious HRECs should be
Mark Taylor, University of Melbourne

The digital disruption of research
Clair Sullivan, The University of Queensland

Enhancing clinical data sharing and reuse: Balancing FAIR Principles with sensitive data protection
Rudolf Schnetler, Townsville Hospital and Health Service

Preferences of individuals for future research use of samples and data in the Australian Reproductive Genetic Carrier Screening Study (Mackenzie’s Mission)
Matilda Haas, Australian Genomics

12:00 - 13:00

AEST-QLD

Session - HREC quality assessment
Quality vs quantity in HREC review in Australia

Gordon McGurk, Omni Advisory


Clinical Research Data Sharing Frameworks: Supporting trustworthy and efficient practices
Lisa Eckstein, Clinical Trials: Impact & Quality (CT:IQ)

13:15 - 14:30

AEST-QLD

Session - Practical strategies 1
Empowering human research ethics committee members to review genomics applications: Pilot testing of a custom online, educational resource
Aideen McInerney-Leo, University of Queensland

Indigenous genomics research – ethical considerations for HRECs
Annalee Stearne, Telethon Kids Institute

An ethical, evidence-based program supporting researchers to return clinically actionable genomic information to research participants
Mary-Anne Young, University of New South Wales 

A Review on the WHO Tool for Benchmarking Ethics Oversight of Health-related Research Involving Human Participants and Its Potential Implications for the Australian Context
Ehsan Shamsi Gooshki, Monash University

Considerations in acquiring ethics approvals for research involving artificial intelligence: Development of a therapist assisted AI powered chatbot to increase gamblers’ awareness of risky gambling and overcome barriers to help-seeking
Tara Thornhill, Flinders Centre for Gambling Research

14:45 - 16:00

AEST-QLD

Session - Practical strategies 2

Practical strategies for safeguarding researchers engaging in sensitive research
Renee Fiolet, Deakin University

Beyond the Form: What types of communication with clinical research participants need ethical review?
Gudrun Wells, Clinical Trials: Impact & Quality (CT:IQ)

In pursuit of ethical and inclusive research: What ethics committees and disability researchers can learn from each other
Megan Walsh & Victoria Stead, Deakin University

Lived experience and the HREC review process – opportunities
Janelle Bowden, AccessCR Pty Ltd

Ethical diligence or gatekeeping – the quandary when vulnerable populations are involved
Heather Lovatt, Central Queensland University Australia

16:00 - 16:30

AEST-QLD

Session - Plenary
Ethics review equivalency, or do we always need local committee review?
Professor Edward Dove, Professor of Law, Maynooth University, Ireland

08:00 - 09:00

AEST-QLD

Session - Plenary

Accessing England's patient records for research: 58 million and counting
Amir-Reza Mehrkar-Asi, University of Oxford, UK

09:00 - 10:00

AEST-QLD

Workshop - Problem solving for HRECs
HREC panel discussion

10:30 - 12:00

AEST-QLD

Privacy Training - Privacy Essentials for HRECs (This session will not be recorded)

Andrea Calleia, Helios

This session will cover topics, such as:

- What privacy means and when it arises in the research context
- How HRECs should be thinking about privacy, and the scope of personal information
- HRECs and the research exemption

12:30 - 14:30

AEST-QLD

Session - Consumer engagement

Conducting research with adolescents experiencing marginalisation and vulnerability
Jess Heerde, The University of Melbourne

More than just the paperwork: embedding ethical practices into how we engage and work with health consumers in research
Adrienne Young, University of Queensland

Involve Australia - in an innovative and systematic approach to community involvement in genomic research
Keri Finlay, Australian Genomics

The GenV participant advisory panel: Consumer engagement at scale in a large birth and parent cohort
Kate Wyatt (on behalf of Libby Hughes), Murdoch Children's Research Institute

Panel discussion (1hr)

This panel discussion will address questions such as:

- How might the role of the community representative on a committee evolve when an application includes a detailed consumer component?- What strategies can HRECs use to effectively assess the quality of consumer engagement in research projects?
- In what ways can HRECs approach the assessment of consumer engagement to ensure efforts are meaningful and consumer input is respected?
- How can we ensure that the information provided reflects genuine consumer perspectives and avoids tokenism?

15:00 - 15:45

AEST-QLD

Session - Psychedelic drugs

Psychedelic panel discussion
Hudson Birden, Ian Tindall and Paul Gatenby

The use of psilocybin-assisted psychotherapy for prolonged grief disorder
Venessa Beesley, Queensland Institute of Medical Research Berghofer

15:50 - 16:50

AEST-QLD

Session - Guidelines

Cultural Safety
Karl Mckenzie, Queensland

Indigenous guidelines
Hayley Germaine, Northern Territory

Human remains, research and indigenous peoples. A perspective from the Human Remains Committee in Norway
Lene Os Johannessen, Norway

08:00 - 09:15

AEST-QLD

Session - Professionalisation (zoom stream 1)

Professionalising the scientific review
Melvin Chin, NSW Government - Health, South Eastern Sydney Local Health district

Barriers and facilitators to retention in long term paediatric clinical trials
Jessie Head-Gray, Murdoch Children's Research Institute

Approaches for registering adaptive trials in the Australian New Zealand Clinical Trials Registry (ANZCTR)
Melina Willson & Peta Skeers, University of Sydney

Facilitating up-to-date information on clinical trials: a case for collaboration between ethics committees and the Australian New Zealand Clinical Trials Registry (ANZCTR)
Angie Barba (presented by Ava Grace Tan-Koay and Melina Willson), University of Sydney

What is the national prevalence of statisticians as full members of human research ethics committees in Australia?
Adrian Barnett, Queensland University of Technology

08:30 - 09:30

AEST-QLD

Session - Specific participant groups (zoom stream 2)

Geographies of ethics, rural communities and education research: a struggle for ethical research
Dipane Hlalele, University of Kwazulu-Natal, South Africa

Visual Consent Tools for Participant Information and Consent in Health Research with First Nations Peoples
Mina Kinghorn

Ethical issues in conducting health research with people in prison: results of a deliberative research project conducted with people in Australian prisons
Paul Simpson, University of New South Wales

Ethical barriers and opportunities to facilitate effective involvement of people with a living experience of dementia in research
Sarah Jay, Dementia Australia

09:30 - 10:00 

AEST-QLD

Session - Plenary (This session will not be recorded)

Positioning positionality
Mandy Downing, Curtin University

10:15 - 12:15

AEST-QLD

HREC Coordinators session

For all HREC Coordinators and Administrators
Register for this session here

12:45 - 14:00

AEST-QLD

Session - Consent

What constitutes informed in informed consent?
Ian Pieper

Determining decision-making abilities of people with intellectual disability consenting to participate in qualitative research – moving from substitutes to supporters
Rhonda Beggs, Logan and Beaudesert Hospital

Inclusive consent practices: Learnings from Generation Victoria

Libby Hughes, Murdoch Children's Research Institute

Title TBC

Helen Deuchar, University of Auckland, New Zealand

Our sponsors

PRAXIS Australia scholarship for HRECs

Find out more...

HREC Coordinators Session

For all HREC Coordinators and Administrators

This year the session will include a presentations on the Western Australia ethics reform,
Section 4 of the National Statement and HREC accreditation.

Register Now

Frequently asked questions

The meeting time are in AEST-QLD

Yes! All sessions will be recorded.  Where we have permission from the presenter we will make the presentation as a resource on our website.

Ensure your pop ups aren't blocked!

Recordings of previous conferences can be found here

Once you have registered, you will receive an email 1 week, 2 days and 10 minutes before the conference starts. A zoom link to each day of the conference will be provided.

The conference can be watched on any device, all you need is the internet.

You can find previous conference resources on our HREC Conference webpage.

Contact us

+61 7 3346 4637

events@healthtranslationqld.org.au

Online conference

Receive our eNewsletter

Connect with us

Quicklinks

Health Translation Queensland acknowledges the Traditional Owners and their custodianship of the lands on which we live, work, and play. We pay our respects to their Ancestors and their Descendants, who continue cultural and spiritual connections to Country. We recognise their valuable contributions to Australian and global society.

© 2024 Health Translation Queensland

Site by NWO