NEWS & EVENTS

Indigenous data sovereignty in health research - 16 April

Explore the concept of Indigenous data sovereignty in health research and learn how to apply it through Indigenous data governance.

Event details

Date: Tuesday 16 April 2024

Please note that this session was not recorded. However, session attendees were provided with a condensed PDF version of the slides for their own personal use after the workshop.

Presenter

• Neane Carter, Solicitor, Terri Janke and Company.
  Neane is a proud Djaara, Yorta Yorta, Wamba Wamba, Wergaia, Wotjobaluk woman from northern and central Victoria

Additional resources

Indigenous Cultural and Intellectual Property (ICIP) refers to Indigenous peoples’ rights to their cultural heritage, traditional knowledge and traditional cultural expressions. This is enshrined in the United Nations Declaration on the Rights of Indigenous Peoples. Where a research project is being undertaken it is important to consider what ICIP is incorporated, and how ICIP will be protected.

Further resources to assist in your knowledge of best practice engagement with First Nations people and their ICIP, please refer to:

• UNDRIP Community Guide - assists Aboriginal and Torres Strait Islander people familiarise themselves with UNDRIP and how the rights can be used in everyday life.

• UNDRIP Business Guide - provides practical guidance for business to understand, respect, support the rights of Aboriginal and Torres Strait Islander people, and embed those rights into business practices.

• AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research – guides ethical research practices when working with Aboriginal and Torres Strait Islander people and ICIP.

• NHMRC Ethical Guidelines for Research with Aboriginal and Torres Strait Islander Peoples – provides the framework for how researchers and participants should be working together on research with Aboriginal and Torres Strait Islander Peoples and communities.

Further resources to assist in your knowledge and implementation of IDSov and IDGov, please refer to:

• Maiam nayri Wingara – The Australian Indigenous Data Sovereignty Collective.
• Global Indigenous Data Alliance – Details on the CARE Principles for data governance.
• Productivity Commission Report – Review on the progress of the National Agreement on Closing the Gap which calls for fundamental changes to deliver on the Agreement.
• Lowitja Institute & Maiam nayri Wingara Discussion Paper – Provides guidance on data governance for Aboriginal and Torres Strait Islander people and communities.

For further information about the work of Terri Janke and Company and the 10 True Tracks® principles please refer to the Terri Janke and Company website.

More information

For more information about this workshop please email events@healthtranslationqld.org.au

HTQ Autumn Seminar Series

This seminar is part of HTQ’s Autumn Seminar Series where we will delve into important topics in health research data management, including governance, planning, documentation, and Indigenous data sovereignty.