Consumer and community involvement resources

Consumer and community involvement is a burgeoning area in health translation. A number of organisations have developed tools, tips and training to help the translational research community deliver best practice consumer engagement.

Some ways to involve health consumers include:

  • co-designing your project with a range of your stakeholders—clinicians, researchers, health consumers etc.

  • inviting consumer advocates to join project steering committee

  • establishing a community advisory group (needs to be resourced)

  • establishing a panel of consumers

  • conducting focus groups

  • getting to know your relevant patient advocacy group

  • recruiting consumers for interviews or other involvement through Health Consumers Queensland or your relevant patient advocacy group

  • conducting broad surveys through Health Consumers Queensland or your relevant patient advocacy group

  • conducting consumer forums

  • working compensation for consumer time into your project budget—consult the relevant government body for rates.

Australian resources

Consumer and Community Involvement Handbook & Quick Guide (AHRA)

Culturally and Linguistically Diverse Ethics Resources (CALDER)

Australian Health Research Alliance

Health Translation South Australia

Western Australian Health Translation Network

Monash Partners

Melbourne Academic Centre for Health

Sydney Health Partners

National Health and Medical Research Council

Australian Clinical Trials Alliance

International resources

Patient Centered Outcomes Research Institute USA

National Institute for Health Research UK

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